At Childhood Tumour Trust (CTT), we are dedicated to supporting vital research into Neurofibromatosis Type 1 (NF1) on a global scale. We collaborate with institutions, including Manchester Metropolitan University and Harvard where we’ve supported student research projects focused on improving understanding and treatment of NF1. Additionally, we funded a PhD student as part of our Breast Cancer Awareness program.

In partnership with the University of Cambridge’s Patient Led Research Hub, CTT worked on a project exploring the experiences of NF1 care across the UK. The results, presented at the British Paediatric Neurology Association (BPNA) Conferences, provided valuable insights into the current state of care for people with NF1.

One of the most powerful ways to support NF1 research is through recruitment. By joining research initiatives, you and your loved ones can contribute directly to new discoveries that can lead to better care and treatments. Signing up for the NF Registry through the Children’s Tumor Foundation and our CTT mailing list ensures that you’re informed of upcoming research opportunities where you can participate.

Your involvement matters – whether it’s by joining studies or sharing your experiences, you help researchers build a stronger understanding of NF1 and its impacts. Join us in advancing NF1 research for a better future.