Family Planning

Having NF1 (whether you are male or female) means there is a chance of passing on the condition to your children. Before you start a family, you may have questions such as “How likely is it that my children will have NF1?”, “How might NF1 affect my children when they are young and when they grow up?”, “When can I find out if my child has NF1?” and “How can I organise the medical care and support that my child may need if they have NF1?”

To get specific answers to these questions (which may vary from person to person with NF1), you can be referred to your local clinical genetics service, by your GP or any other doctor. If you or your partner becomes pregnant, and you want to discuss options before your baby is born, you can request an urgent referral to clinical genetics from your midwife or GP.