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Supporting children, young adults and their families up to the age of 30

Supporting children, young adults and their families up to the age of 30

How you can help

Your support makes a world of difference for children and families affected by Neurofibromatosis Type 1 (NF1).

Here are some impactful ways to get involved:

Fundraising ideas

Fundraising helps raise essential funds and awareness for CTT’s programs and research. Here are some creative ideas:

Mufti Days at school or work

Organise a casual dress day with a small donation to participate. Wearing blue and green, the NF1 awareness colors, makes it even more impactful!

Host a coffee morning or picnic

Bring friends and family together for a blue and green-themed picnic or coffee morning, raising funds while enjoying good company.

5K any way

Walk, run, cycle, or even skip a 5K in your own style and invite friends and family to sponsor your efforts by setting up a page on JustGiving.

School and community events

From bake sales to talent shows, every little bit helps support our mission.

Participate in awareness campaigns

Awareness campaigns are vital for educating others and creating a supportive community for those with NF1. Here’s how you can join in:

NF Awareness Month (May)

Throughout May, share stories, facts and resources to help raise public awareness about NF1.

NF Awareness Day (May 17)

On this special day, wear blue and green, share our materials and encourage others to learn more.

School presentations

Use our PowerPoint presentation to give an assembly or classroom talk at your local primary school, helping young people understand what NF1 is and how it affects people.

Join the NF Registry

What is the NF Registry and why is it so important?

The NF Registry is a powerful tool that collects health data from individuals living with Neurofibromatosis Type 1 (NF1), and all types of NF to support research and improve treatments. Although it was originally set up in the USA, it is a global registry, meaning that researchers and scientists from around the world can access it and use the data for studies in their own countries.

By joining the NF Registry, you’re contributing to a worldwide effort to better understand NF1, improve patient care, and drive breakthroughs in treatment options. Your participation can help shape the future of NF1 care – in the UK and around the world.

It’s simple to join and every bit of data shared brings us closer to finding better solutions.
Create a personalised JustGiving page for any of your fundraising activities to make it easy to share with family and friends and track your progress.

Together, we can make a difference in the lives of those impacted by NF1