b'2IntroductionThis is an additional insert for your childs Personal Child Health Record Book (PCHR), which is issued to all new babies in the UK. These extra pages have been produced by Childhood Tumour Trust, in collaboration with Dr Susan Huson (CMFT), Dr Carly Jim (MMU), Dr Shruti Garg (CMFT), and Dr Ellie Paul for babies and children who have been diagnosed with Neurofibromatosis Type 1 (NF1).The pages give additional information that aim to help you and health professionals monitor the health of your child. Babies and young children with NF1 have just the same needs as any other child, but they may also have additional requirements. You should take your child for routine health checks and immunisations in the usual way (see main PCHR). It is not possible in this small booklet to cover all topics relevant to your childs health and well-being. Your local healthcare team, or one of the agencies listed at the end of this insert will be able to provide more information should you require it. Neurofibromatosis Type 1Health problemsBabies and children with NF1 should have some extra health checks (see next section) so that if there is a problem it can be identified, examined and if possible, treated as quickly as possible. There is no such thing as a typical child with NF1.Children with the condition are as different from each other as are all children, however NF1 brings with it certain medical complications. A child with NF1 is at increased risk and therefore requires further monitoring: these are listed in the following pages. It is not possible for this booklet to cover all the conditions which may occur more frequently in children with NF1. Those discussed above are some of the most common. Any concerns you may have about your childs health should be discussed with your local health professionals.PCHR Insert for Neurofibromatosis Type 1 First Edition April 2017'