b'4 Neurofibromatosis Type 1Suggested schedule of health checksThe following are suggested ages for health checks. Check at any other time if there are parental or other concerns. What to checkHow NF1 can affect thisAge when checks neededAction DevelopmentEarly milestones are usually normal in NF1 if Development- mainly 0-5 yearsChildren with significant delay delayed the child needs assessment for nonGrowth and head circumference 0-16should be referred to child NF1 causes. Nf1 often affects fine motoryearsdevelopment team.skills. Review development - notingcoordination and speech difficulties. Children with early/delayed puberty Children with NF1 often have mild short should be referred to a paediatric stature and relative macrocephaly whichendocrinologist only need investigating if crossing centile lines. Precocious or late puberty occur slightly more commonly on NF1 Education andMost children with NF1 have a normal IQ but Consider REFERRAL for professional behaviourcan find learning harder than their peers. Learning and behaviour problems usuallyassessment of educational needs. Coordination can affect handwriting. Up toobvious by age 8 years and wont thenSeek advice from SENCO, child50% of children with NF1 have ADHD, withdevelop if not present.development team or CAMHS more concentration problems thanhyperactivity. They respond well to smalldoses of stimulant medication. Approximately 40% of children have ASD. PCHR Insert for Neurofibromatosis Type 1 First Edition April 2017'