b'Where can I find support?The Childhood Tumour Trust was started by a parent and its members consist of parents, carers and people with NF1 who wanted to make a positive difference. You can find more information about us on our website:www.childhoodtumourtrust.org.ukor by looking us up on Facebook.Other organisations/ resources that could help you: Tumour Support ScotlandA charity based in Scotland that providesadvice on supporting children with NF1 who havelearning difficulties. Nerve Tumours UKA charity that offers in-depth guides to every aspect ofNF1, including a booklet for teachers to learn more about the condition. They have also created a network of specialist NF1 nurses who work at NHS trusts around the UK.Helping Your Nf1 Child by Dr Christopher MaloneyA book with detailedinformation all about NF1 and how to prepare for the future.Remember to look after yourself and take time out to recharge. You cant look after your child if youre suffering from burn-out. Its normal to go through a range of emotions at diagnosisincluding grief. It is important to discuss how youre feeling and get the support you need. Childhood Tumour Trust has a counselling service as well as workshops to help you through diagnosis and beyond. CHTT2204 CTT Booklet A5_v5.indd 13 20/09/2022 16:19'